Confusion Between Remission and NED: Tabitha Paccione’s Story
It took the better part of a year of feeling unwell before Tabitha Paccione would receive the shocking news that she – a young, in shape, and otherwise healthy woman – had lung cancer. Currently NED, Tabitha speaks honestly about her own personal confusion between remission and NED.
“I have always been confused with the actual difference between remission and NED. It just always seemed so closely entwined. I was under the impression that remission meant that all of the cancer was dormant or “asleep” in a survivor’s body. I was told by my oncologist that I am currently in remission, but in the same breath, he also said that he sees no cancer in my body.”
“Ever since I was diagnosed I have heard that NED was the ultimate goal, and I dreamed of one day getting there. I now understand how truly complex cancer is, and I am now able to truly appreciate that whether I am stable, in remission, or NED, I am living. And I am so grateful for that opportunity. Those terms don’t actually define me. I am so happy to be alive now. And I am happy to know that one day, that term NED will apply to everyone because of how hard we are fighting for more funding and more research. Hopefully, I will be here to experience that joy, but either way, I am just happy to be here right now in this moment.”